Tuesday, 24 May 2016

Epilepsy: The "annoying" child

Yesterday I visited a friend whose 10-year-old child has epilepsy. He (I’ll call him Percy) is such a sweet and bright child, who unfortunately has to tip toe through life to avoid triggers for his condition. He has had many epileptic attacks at school, which has affected his academic performance and his social life, judging from what he told me.
I was just making small talk and asked him if he was having fun at school. Here is how our conversation went:

Me:  So are you having fun at school

Percy:  Not so much.

Me: Why?

Percy: I don’t have many people that like to be my friends.

Me: Why?

Percy: They all think I’m annoying.

Me: Do you enjoy annoying people? What exactly do you do to annoy them?

Percy: I don’t know what I do to annoy them. I don’t want to annoy them, I want to make friends. Sometimes I make funny sounds to make them laugh, and they say I’m annoying. Then sometimes I keep quiet, and they still say I’m annoying. I think I have an annoying personality.

That conversation broke my heart. I am convinced that the other kids are just afraid or uncomfortable with his epileptic fits at school and they now avoid being around him.   There is so much that needs to be done to educate our children about disabilities and how they should handle themselves around people considered to be “different”. Now Percy goes through life thinking he has an annoying personality, yet his failure to make friends has nothing to do with his personality at all. He’s just a regular kid but happens to have epilepsy, which ranks highly among stigmatized conditions.
I remember when I grew up, there was a boy called Chemadota, who has since passed away. Loosely translated, his name meant “the one covered with ashes”. That wasn’t even his real name, but he acquired it because he was epileptic. He would fall on the ground and have serious fits and people were scared of him, even though they still found time to laugh at his condition. By the time the fits passed, he would be covered in dust from head to toe, hence the name Chemadota. The severity of his epilepsy resulted in him being developmentally challenged, which people found hilarious.  It did not help that he was from a very disadvantaged background and was always barefooted and in tattered clothes. He was taunted everywhere he went, but was just a harmless boy with epilepsy.

I remember people telling me that people with epilepsy would foam at the mouth during a fit, and if you came into contact with the saliva, you’d automatically catch the epilepsy too.  I also heard the ridiculous assertion that if you looked in the middle of the footprint of a person with epilepsy there would be the paw print of a dog in the middle. People alleged epilepsy was demonic and once you fell into the fire, it would be untreatable. I don’t know where people got all that, but the message was clear: We were to stay as far away as possible from Chemadota or anyone with epilepsy. All that happened more than 20 years ago. It’s painful to note that nothing much has really changed in terms of raising awareness for epilepsy and other disabilities. 
When I was pregnant with my 10-year-old, I used to interact with many people with disabilities. I was advised that whenever I saw a person with a disability I was to discreetly spit in my dress to avoid having a baby with a disability. I never followed that advice, and had a child with autism, but I know it had nothing to do with not spitting. You spit when you have nausea, when there's a bad smell around you and you're revolted. You don't spit because someone has a disability.
I was telling my friends that I wish schools would just have about 30 minutes per week to discuss disabilities, prepare children for them. There are so many disabilities that children need to know about. They are growing, they will be parents who will probably also have children with disabilities. They will want to know how to treat them and they will want them to be treated well out there in the big, bad world full of uninformed people.  My friend, Celi, who’s a staunch advocate for disability awareness said: “…it does not come naturally for kids to shun others. It is learned behaviour.” I totally agree. Discriminatory kids grow up to be discriminatory adults who will also raise their own discriminatory kids. We will never see the end of this is something drastic is not done. 

Monday, 16 May 2016

Tilapia Recipe from Global Village

Chef Sifiso Mhlanga
Serving suggestion
I got this recipe from Chef Sifiso Mhlanga from The Global Village. He is a boisterous young man who said his passion for cooking started when he was still a baby and would cook with sand and water. He owes his love for cooking to his late mother who used to prepare and sell food at the Luve market. From watching his mother, he started cooking for the family before getting training at Oliver’s Restaurant in Nelspruit as well as at Bulembu. “When I prepare something really good, I just wish my mother was here to see it because she’s the one who encouraged me,” he said. He has been with The Global Village for a year but has been cooking since 2002. Chef Sifiso said he loves spoiling his wife, who teaches out of town, with decadent treats when she comes home for the weekend.

 

INGREDIENTS
Ingredients for the whole Tilapia meal
Tilapia fish

Fish spice

Mixed herbs

Cake flour (to dust the fish)

4 lemon rings (to garnish) the fish

 
 
 
 
 
 
 
METHOD:


 ·         Season the fish with fish spice or salt, and mixed herbs.

·         Dust it with cake flour.

·         Fry the fish briefly on both sides, ensuring that it has browned.

·         Move the fish to the grill and grill it until it is golden brown.

·         Remove it and set it aside.


Preparing tilapia for cooking
 
SALAD INGREDIENTS

1 medium onion

1 medium tomato

8 slices of cucumber

Slices of olives

2 mushrooms to garnish the salad

6 cubes feta cheese

Quarter medium carrot, sliced

 
COOKING TIPS

Sealing is a foolproof way to keep your fish juicy.  It is the process of frying the outside surfaces of fish, or any piece of meat, to "seal in" the juices and maximize flavor. The oil in the pan must be very hot. Carefully place the fish into the pan and leave it for 10 to 20 seconds, then flip and do the other side, before putting on the grill to finish cooking. This type of cooking also prevents the fish from sticking to the pan. Be careful when handling very hot oil.

 

 


 


 

The dinner-that-never-was at Global Village Restaurant

Saturday May 14 was our 11th wedding anniversary. My husband asked me to choose which restaurant to go to. I picked Global Village in Manzini because we had his birthday dinner there, which was perfect, and my friend is the manager there and I wanted to support her business.
We arrived to a lukewarm reception from a self-effacing waitress and we had to ask if they had drinks as she had not offered anything. We planned to have a 3 course meal, and ordered crumbed mushroom and chicken livers from the menu as starters.  They each cost about E50/R50. The waitress said she would go and find out from the kitchen if they had ingredients for our order. She came back with the shocking news that they had neither chicken livers nor mushroomsL. I asked how that could be, because that restaurant is located less than 10 minutes from Manzini town where supermarkets had mushrooms and livers. A punnet of white button mushrooms costs E28 at Pick ‘n Pay, and they serve you less than a third of the punnet. A kilogramme of chicken livers sells for E16, and they give you about E5’s worth as starter. So I could not understand how a whole restaurant could fail to procure commodities that were so cheap and would still have given them a profit.
Moving on, we said so what do you have, she said they had samoosas. We didn’t want samosas so we decided to skip starters and moved to the main course. My husband chose a tilapia dish. The reason why we had settled for Global Village in the first place was because of their tilapia which we enjoyed when I was writing a cooking column for a local newspaper. Read here for their tilapia recipe*. We had always vowed to visit  Global Village again for the fish. The waitress said they did not have tilapia and said my husband could have hake insteadL. He didn’t go there for hake so he declined. I ordered chicken lasagna, and the shy waitress said she would check if they had it. I said they should surely have it because there are chicken dishes here, and chicken is the main ingredient in the lasagna that I want. I was to be dismally disappointed. They didn’t have chicken lasagna eitherL. I said ok what do you have? She said they had pork chops and grilled chicken. If I wanted grilled chicken I would have gone to Nandos, they make the best grilled chicken as far as I’m concerned.

Dessert from Lugogo Sun Hotel
I then asked my husband that we go to Lugogo Sun where they have buffet dinner every day. I was not going to eat what I didn’t like on a special occasion and have an unwanted dinner shoved down my throat by people with zero regard for their customers. We were paying customers for crying out loud, so why were we supposed to be the ones that bend over backwards to impress the restaurant with our patience with their bad service? It’s as if people just expect you to understand that they’re not serious and you should just grin and bear it and say it’s ok. No it’s not OK that by 8pm I was still driving around to the next restaurant with a rumbling stomach. I was quite hungry! We told the waitress that we were just paying for the drinks and would find food elsewhere, and she said OKK. Well, we took our money elsewhere, and that’s what I would want everyone to do – walk out on service providers that are not out to impress you and give you value for your hard-earned cash.
On our way to Lugogo Sun, I felt it was wrong to just go quietly without talking to my friend, the manager at Global Village. She had to know so that she could try and salvage the situation. I sent her a text reading:
Hi *Name* we’d come to clelebrate our 11th anniversary at your place but we’ve left without eating. We wanted mushrooms and livers as starter but were told there were none. Then main meal we wanted tilapia and chicken lasagna and were told we also couldn’t have that. So we’re not going to Lugogo SunL. 1kg liver costs R16 in town and mushrooms are there at Spar. We will bring our own food next time, because we know where to find it, then the chefs will just cookJ.
She responded saying sorry and that she would deal with the issue. I wonder how many more customers just walk our quietly and spread the word on the bad service. Word of mouth can actually floor a business.
I had avoided Lugogo Sun initially because I was trying to avoid the buffet, which I feel prompts me to overindulge a little. They always have a wide array of meats to pick from – chicken curry, chicken stew, roast chicken, leg of lamb, roast beef or pork, goat stew – you want it, they’re bound to have it. They also make the most delectable eclairs, cakes, custard, pudding, ice cream for dessert. Don’t get me started on their yummy creamy soup of the day. No, they didn’t pay me to say this, and yes, they’re that good! They also make the best pizza in town, which I didn’t have the pleasure of eating on this day. As soon as we got into their restaurant, I looked around, felt my taste buds tingling with anticipation, and thought, “Now we’re talkingJ!” We had a good dinner at Lugogo Sun, and guess what, they had mushrooms! YayJ.  All is well that ends well. To 11 x 11 more years!

Sunday, 8 May 2016

Miscarriages are heavy losses too!

 Happy Mother’s Day to all moms reading this today. I’ve had a good one, though it was a day of mixed emotions; I’m grateful to God for the gift of motherhood which others do not have, and I’m a little low because this would have been the day when my second child would have arrived, according to scan results, had I not miscarried in October 2012. It’s not like heart-wrenching pain I felt when it happened, but it just is a sad memory that can wipe a smile off your face when you remember. I have never really spoken at length about it, and will only do it now.
A few people in my circle had miscarriages before me, but I never got to speak to them to find out how exactly it felt to lose your unborn child. I just thought it would be quite disappointing. It’s way bigger and deeper than a mere disappointment. . It involves a lot more than just bleeding on a pad and moving on with life. As I was writing this, I asked myself whether I was just over-sensitive about something that I should just let go of. I spoke to two people close to me about their experiences trying to move forward. One said, “I try so hard not to think about it anymore.” The other said, “It is impossible to forget all the hopes and dreams that would have been crushed by that event. I guess I get by by pretending it never happened sometimes.” Clearly those that have been through it also have to make a concerted effort not to think about it.
When it happened to me, it was such an incredibly crushing blow. My first child is autistic and was 6 when the miscarriage happened. I had been up to the ears in pressure from all directions to have a second one for quite a few years. One cousin was always coming to me with tales of how my mother was pushing her to push me to have another child. No-one cared to ask why I was taking my time. They just wanted me to have another. That’s actually a discussion for another day.
So I had the second pregnancy when I felt I was emotionally prepared for it following the trauma that had come from the autism diagnosis. Losing that baby was among the worst things that ever happened in my life. When you discover that you are pregnant with a child you’re ready for, you obviously get excited. You calculate dates, you start looking at cute baby things in the shops and make mental notes about what to buy and where to get it from when the time is right. You see and feel your body changing and you know it’s because you are carrying another human being inside you. It’s a beautiful feeling. If you have a child with special needs, it is even more exciting because you feel you have got another shot at experiencing normal motherhood.
My GP was worried when my blood pressure got extremely low. He asked if I was in any form of pain, I wasn’t. Another Dr had also noticed the low blood pressure a few days earlier and had dismissed it and said maybe the machine was defective. My GP said I should quickly make an appointment with a gynaecologist, but before I got round to that, the miscarriage happened. I knew something was wrong when I saw the look on the Dr who examined me after I had started bleeding. I don’t quite remember what it was but I just knew. Then he said, “There’s no heartbeat. I’m afraid you’ve lost your baby.” He said from the look of it, the heartbeat had stopped a week before the bleeding started. He said I had to go home and process the bad news, then come back within 48 hours for dilation and curettage (D&C), a surgical procedure often performed after miscarriage to stop bleeding and prevent infection. I was quite numb at first. I just said OK and went back home with very dry eyes. When I got home that’s when I cried buckets. My stomach was already showing, and I could not believe I was carrying a dead baby in it. The next morning while making arrangements to go for D&C, I started having excruciating stomach ache. We rushed to the Life Brenthurst Clinic in Parktown. At some point I couldn’t see anything and couldn’t walk because of the pain. I had to be pushed in a wheelchair.
I will skip the other gruesome details, but all I can say is a miscarriage is not something to be taken lightly. You don't say, “Oops shame, don't worry you can try again,” to someone who had lost their unborn child. This is not like you're discussing a game of chase. Others would say, "At least it's not like losing a real baby. You hadn't met this one yet."
I was told that in my culture, condolences should not be expressed or accepted following a miscarriage. And why not? It is a heavy loss. I was told not to respond when people said sorry because it would bring bad luck. I was also advised not to cry because people who had suffered miscarriages were not supposed to cry. I cried a lot! For many, many days. Some family members didn't say anything and just acted like nothing happened. It was a very difficult time.
At the hospital I was treated by renowned gynaecologist and fertility specialist, Dr Herman Netshidzivani, a man with an impeccable bedside manner. I was, however, taken aback when he kept referring to the baby as "product of conception". I know it’s probably the medical technology for it, but because I was bitter and confused, I felt he was making light of my misery, even though he was, still is, among the most wonderful and warm doctors I’ve met in my life. The other staff members weren’t very nice.
Reality set in after the D&C that I had really lost my baby, they had cleaned my womb, there was nothing anymore, and I woke up wailing for my baby. A theatre nurse said I should go for counselling, which I never did. Afterwards I’d find myself grinding my teeth a lot. I should have gone for counselling.
I didn’t really look around me when I was admitted, but I was placed in a ward where I could hear newborn babies cry. Even when I was waiting to be attended to, new mothers passed by with nurses wheeling their babies in trolleys. It was such a stab in the heart.  When I went for checkup a few weeks later, pregnant women were visiting the same Dr for their own issues, my stomach was still distended, and excited, chatty mothers-to-be would ask, "So how far along are you?" Then I’d say I lost the baby.
Coming back home babyless was very painful. My son only noticed that my nail polish was gone. They had removed it before I went into theatre. All I could think was, this child is worried that my nail polish has been removed. A baby has also been removed and he doesn’t know that. Nothing prepares you for the pain that you feel having to explain to people close to you that you suffered a miscarriage. I won’t even start on the sore breasts when the milk starts drying out because there’s no baby to take it. But you do recover from it; your heart doesn’t bleed about it forever, even though you can’t erase it from your mind.  
A day after the procedure I was back in class, catching up with my final year project, even though the Dr said I was to take two weeks off.  I just wanted to bury myself in something that wasn’t sorrow.
Suddenly every woman I saw on the street was pregnant, everyone on Facebook was popping babies left, right and centre, like they were trying to rub it in my face and say, "see, easy peasy, this is what you failed to do". I would see beggars on the Joburg streets with two babies and would ask myself, how could I fail to carry a baby when I eat good food, have access to healthcare, and live comfortably? How can I be beaten by this person who eats bad food on the street (if they eat at all), and probably only goes to hospital to give birth, with no prenatal visits in-between? My friend, Mary, likened it to what happens when you’ve just had a break-up. It will look like everyone is in love, people holding hands everywhere and at every street corner you will see a kissing couple, and wedding pictures all over Facebook. All you want to do is go home, hide and lick your wounds. I became so sensitive to certain expressions. I was doing my end-of-year project, and interviewed a disgruntled father who felt the justice system had failed him and his miscreant son. He liked the phrase, “miscarriage of justice” a lot, and the word miscarriage is what jumped at me and kept ringing in my ears. I almost asked him not to say that.  
Since I didn’t get counselling, I tried joining some online community for people who had suffered miscarriages, but ended up unsubscribing because the group was one big endless pity party, and I didn’t see how I would move forward if I was constantly around such raw emotion and negativity. I decided to just do it my way, one step at a time. Baby steps.
In a cruel turn of fate, my favourite South African soapies Scandal! and Muvhango were running with miscarriage themes at the time of my loss. When the affected characters cried, I cried with them.
After a miscarriage, you wonder what the child would have looked like, what kind of personality they were going to have. I felt so ashamed of myself, I felt like a loser, which I was because a loser is someone that has lost. I thought maybe God was telling me something; that maybe procreation is not for everyone.
I was worried what I would do with myself on the EDD. I bought candles to light on the day in a special little ritual I planned to observe every year.  That happened to be my busiest day at work and I only realised after midnight that I’d forgotten to light the candles, and felt really crappy, like a bad mom who forgot her child.
I’m still very aware of the loss but no longer cry about it. I think I only cried last week, which was the first time in the past three years, when someone asked for details of what happened. I have conflicting emotions. On one hand I’m so grateful that I got another child afterwards. I want to count the garden by the flowers, not the leaves that fall. I was already pregnant on the EDD of the one I lost. Others find they can’t conceive after a miscarriage, so I am indeed blessed. On the other hand, I sometimes feel that by trying to forget, I’m trivializing the loss. I wish it were possible to cry with one eye, or smile with half your mouth. This was going to be a human being but didn’t get a chance.
There are always subtle reminders. In my case it’s my friend’s baby who was born the same week mine was supposed to arrive. When I wanted to try, I was joking with my friend Faith and said let’s do it together. She said, “Yes, let’s do it!” and we conceived at the same time. So every time her son’s birthday comes, I can’t help thinking, “Oh…L”.
When I discovered I was pregnant again, there wasn’t much excitement. I just looked at the two red lines on the pregnancy test kit, showed it to my husband and we both didn’t say anything about it. We had been so excited with the other one and he had bought a nice little potted flower to celebrate. A few days after the miscarriage, the flower also died and I cried my eyes out some more.  I did not get to enjoy the third pregnancy as other moms get to do. Every funny sensation was enough to send me scurrying off to the loo to check. I was always on tenterhooks.
When the loss happened, I wondered if there’s something I’d done wrong, like taking medication or bad food. Did I overwork? Now I’ve accepted that it wasn’t something I did. Even if it was, it wouldn’t have been deliberate. It just happened.
In the end you just tell yourself God knows best. There must have been a good reason for that to happen. If you don’t think that way, your thoughts will just drive you crazy. Now I feel a little better after getting things off my chest. Miscarriages are a hush hush affair in my culture, but I think people should talk in order to heal. It’s archaic to tell people not to grieve after they lose their unborn baby, to force them to just internalize the pain. Way back in time twins and albinos used to be killed at birth in some parts of Africa, but that is not done anymore. A few beliefs should change along with that.